November 06, 2010

Charlotte's Last Day in the NICU

The day Charlotte went home was also the day they moved the NICU from the 2nd floor to the 4th floor.  Here are some pictures of her new digs and her last hour before we brought her home.

Emily reviewing Charlotte's discharge report.

Our favorite nurse Dee Dee made this sign.  But we never got a picture of her, just the sign she made.  Dee Dee was the nurse who gave the specific directions to me on how to pace Charlotte's feeding.  It was those directions that helped Charlotte turn the corner with her feedings and finally get to go home with us.
Hurry up and finish that bottle Charlotte so we can go home!

One final NICU family portrait.
Locked and loaded and ready to go home.  Our friend Julie Cannon knitted this hat for Charlotte.  Those aren't her real ears.

Happy um Halloween... in a November sort of way

   
Fall hat knitted by our friend, and Emily's childhood friend, Joanna.




One of Charlotte's NICU nurses made this sign for Charlotte.  This was as close as we came to celebrating Halloween this year. 

Nappers

November 04, 2010

Look But Don't Touch

Ben came over to visit Charlotte before he went to work.  Charlotte's immune system needs a little time before she can be handled by anyone besides me and Emily.  We take Charlotte to her first pediatrician's appointment tomorrow and will get some more clarity about how social Charlotte can be.  All early answers point to a reclusive winter for the three of us.

So it was nice to see Ben.  He brought us some honeycrisps and his camera.  Here are the fruits of his labor.

Charlotte is now strong enough that we probably don't need to hold her up with one hand anymore, but it's hard not to.



Charlotte's present feeding pattern is to sleep for three hours, and then eat and nap on and off for two hours.  Ben showed up during a 20 minute power nap during one of her feeding times.  She comes by it honestly: no one has a bigger reputation for taking longer to eat than her father.  


November 03, 2010

At Last

We are finally home with Charlotte.  As I type this Emily is napping with her, if you define napping as getting mad at the cats every two minutes for snooping around Charlotte.

I am off to Gladys' house to get Pancho and introduce him to the newest member of the zoo crew.  Gladys is the dog of our friend Doug and Erin, so technically it's their house.  So there is a lot of good information on how to bring a baby into the house for the first time when you have a dog, but not a whole lot to go on in terms of bringing the dog into the house when the baby got their first.  I have a plan though.

I wonder whose world will be rocked more: Pancho's or Charlotte's?



Or ours?

November 01, 2010

Go To Your Room

A few people have asked what life in the NICU is like.  It's a fair question because only five people are allowed access to Charlotte, aside from her nurses and doctors.  Those five people would be me and Emily and then we are allowed to put four people on a list who can also come into the NICU with us.  These four people are allowed to look, but can't touch.  We put Emily's mom and her sister Jessica, and Jessica's husband, Ben, on the list.

So we have a fourth name we can add to the list.  I am willing to sell that vacancy to the highest bidder.  But be forewarned, I've got this thing and it's effing golden.  And I'm not giving it up for effing nothing.

So what is Charlotte's world like?  In a word, limited.  She spent the first three days of her life on the south side of the NICU where the most fragile kids stay, and then when she moved off the CPAP tubes in her mouth, she graduated to the north side of the NICU.


She gets out of her crib for feedings, to be bathed once or twice a week, and to be weighed.  Otherwise, she hangs out in her crib.  This may not sound like much, but she is certainly a lot more active than her age-matched, in utero peers.  So here is a tour of Charlotte's world.

This is the room Emily and I stay in in between feedings.  Emily stayed here every night until a few days ago.


How we typically pass the time: surfing the web, reading, watching TV, talking to visitors.
To the left is the nursing station and to the right is a hallway leading to the infamous room 211 where Emily stayed during her bedrest.  That door is the secured entrance to the NICU, where Charlotte lives.  We can bring her up to the window for people to look at her.
Charlotte's "room."  Curtains for walls, sterile bin for a crib, and a oxygen saturation monitor for an entertainment center.
Charlotte's kitchen.  Whatever milk she doesn't take from a bottle or nursing is fed to her through an NG tube via this giant syringe.  The machine it is hooked up to delivers the milk at a set pace.
A room with a view.  From our vantage point we can see Charlotte's neighbors, depending on whose walls are up or down.  You get to know a lot about the parents around you without ever talking to them, but just by listening to them talk to everyone else.
Our living room.
Not a perfect home, and not what we imagined, but it's worth it.


Double Take

3 weeks old
ultrasound picture 29 weeks